This evening (Monday) it looks like a break through has been achieved. I understand that EUSA Pharma has said it will fund the full course of treatment for all children who have started. This is a great relief for us and the other families and we are grateful. Thank you to everyone who helped spread the word. I am sure that helped. We look forward to further enlightened decisions from NICE and NHS England so that all children who need this treatment continue to get it.