This evening (Monday) it looks like a break through has been achieved. I understand that EUSA Pharma has said it will fund the full course of treatment for all children who have started. This is a great relief for us and the other families and we are grateful. Thank you to everyone who helped spread the word. I am sure that helped. We look forward to further enlightened decisions from NICE and NHS England so that all children who need this treatment continue to get it.

9 thoughts on “Breakthrough

  1. I heard the great news from all your relations tonight. Praise the Lord, as they would say in the Bahamas where I am headed to see my grandchildren.
    Much love xhx.


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s