This evening (Monday) it looks like a break through has been achieved. I understand that EUSA Pharma has said it will fund the full course of treatment for all children who have started. This is a great relief for us and the other families and we are grateful. Thank you to everyone who helped spread the word. I am sure that helped. We look forward to further enlightened decisions from NICE and NHS England so that all children who need this treatment continue to get it.
Isita 
Excellent news, hooray! from Mrs T x
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Amazing. Love to you all. Xxx
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Fantastic News! xxx
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What wonderful news. All 4 of you deserve it. More candles to be lit and lots of prayers. Much loveXXX
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I heard the great news from all your relations tonight. Praise the Lord, as they would say in the Bahamas where I am headed to see my grandchildren.
Much love xhx.
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Uff, gracias a Dios, buenísima noticia !!
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Wonderful wonderful!!
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Such good news! And the right decision made by EUSA Pharma. Lots of love
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This is needed for all children who need it and not just for those who have started treatment.
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