On Thursday, the intensive care doctors experimented with taking Isita off the ventilator. The night nurse Karine called us at seven o’clock in the morning to say the tube was coming out. We rushed over to find her awake but breathing hard.
It was lovely to hear her speak after so many days. We watched her progress anxiously. Her blood gases, which test the balance of electrolytes and carbon dioxide in her system stayed good all day. But this was due to her own effort. She was working too hard.
In the late afternoon they decided to sedate her and put her back on the ventilator before she became exhausted. There was still infection in her lower lungs preventing her from breathing normally. This felt sad, but far from the crushing shock of the first time. Also, just before, we had heard that her trephines were clear of neuroblastoma. From an oncology perspective, she is doing brilliantly.
By Friday morning, Isita was again on low levels of ventilation, and was also half awake for some of the day, giving a thumbs up or shake of the head to say what she did or didn’t want, and listening to Taylor Swift on the nurse’s iPhone. By the evening she was breathing with minimal support.
We’ll try to take her off the ventilator again sometime today (Saturday) or tomorrow. Everyone wants to make sure she is fully ready.
We’ll get there. It feels like she is being willed along by the whole hospital. So many of the nurses from Elephant have come down to see her over the past week. We have been around for so long that we meet staff who have been involved in her care in the corridors every day. They always ask about her.
The support of all of you who read this blog is so important to us as well. A few days ago we got this amazing e-mail from one of Isita’s friends from nursery school.
I MIS YOU I AM GOING TO RUN THE GREATORMOND STREET RACE TODAY AND WILL DEDICATE IT TO YOU. i REALLY want to come AND VISIT YOU BUT I HAVE HAD a really bad cough for 3 weeks and MY MUMMY SAID i CANT COME TILL I AM BETTER. i HOPE TO COME NEXT WEEK. hOW ARE YOU? Lots and lots of LOOOOOOOOOVE LEO
As his mother told us, at the start line he said “this is for Isita!” He raised £1,744. Amazing. Thank you, Leo.