Marta and I discussed Isita’s treatment this morning with Dr Giuseppe and our specialist nurse Susan. We also signed the consent forms to be included in the clinical trial for children with high risk neuroblastoma.
The treatment, either by the European or US protocol, will start tomorrow (Wednesday) afternoon. We must hope and believe that the next three or four months of chemotherapy are as effective as possible. A good initial result makes all the next steps easier.
So, we are completely focused on being strong for Isita, and ensuring she can be strong for herself. Dr Giuseppe’s common sense advice was that we should provide her with as much normality as possible and to do our best to keep her in a good mood without spoiling her. This is a good practical task for us.
Dr Giuseppe was unsurprisingly sceptical about homeopathy – although we can get a recommendation to the homeopathic hospital next to GOSH. I am not sure what he would make of my Christian Science education with its focus on spiritual healing, let alone of the precious hair of Santa Angela de la Cruz, and the holy water from Lourdes which some darling devout Tias asked Marta’s sister Bego and her mother to carry over to London. They brought more than 100ml so had to check their bags in.
Intellectually these beliefs and ideas don’t sit together easily. Neither the religions nor the sciences agree even between themselves. But for us here and now they are united in a common objective – Isita’s wellbeing. As we have said to each other many times over the past fortnight, we will draw our strength from where we can.