Marta and I are going into GOSH tomorrow to make the final decisions on Isita’s treatment with the doctors, and to sign the consent forms. We will then all go in on Wednesday morning for Isita to start treatment. 

As the reality closes in, it becomes more nerve-wracking. The drugs and the therapy are very strong.  But for now we are still at home. I managed to do some work in the morning and looked after Isita in the afternoon, until her school friend Castile came for tea and they made cupcakes with Maria, who is keeping our whole household in order.

Now she and Jamie are in their pyjamas watching a Tarzan cartoon and drinking milk before bed.