Isita has just gone to sleep after a quiet day. She gets uncomfortable in the evenings when she is tired, so I am drowsily rubbing her arm. They are about to switch her from ibuprofen to a low dose of morphine.
We had an ultrasound in the morning- this was mostly to help the doctors plan for the biopsy. The tumour is surrounded by healthy tissue – so they need to find the right way of getting to it.
Then they took some blood. This involved a lot of persuasion. Isita doesn’t like the idea at all – but insists on looking- ‘show me the size of the needle!’ It isn’t a good idea, but she is pretty determined.
She is also a ruthless negotiator. After the blood test she ended up with two barbies, a pop-up pirate toy and we had to buy her a soft tiger downstairs. I have no idea how she managed this.
Earlier Marta and I had a reassuring chat with Susan the specialist oncology nurse who is looking after Isita. ‘We aim to cure all our children so they can grow up to have normal healthy lives ‘ she said.
We are waiting to hear when Isita goes for the biopsy. This is the next major event.